Friday, March 30, 2012

Board? What Board?

Some of you may know that I am on the RLS/WED Board of Directors. In some instances, that means a lot--in others, nothing at all. The main thing is that I suffer just like all of the other RLS/WED people out there. Secondary to that is being on the Board; although if I didn't have WED then I wouldn't be on the board.....

In any case, I know from being on the WED discussion board and Facebook, that most people don't know anything about the Board of Directors or what they do. We will be meeting next month in Chicago for a face-to-face meeting, one of only two we have each year. However, there are lots of conference calls and emails flying back and forth to keep us in touch. The Board is made up of more women than men but we try not to overwhelm them! The members are from all across the United States and are made up of highly professional people--and me. Some have WED and some do not but it has touched the lives of everyone in one way or another. The one thing we have in common is a passion for finding a cure for WED and for helping others until that cure is found.

I think it is important to let you know what the Board is working on and how that will affect you. So after this next board meeting I will blog and facebook information that you might find helpful or just interesting. One thing you should know that shows the dedication of these people--they pay their own expenses to these meetings. Not only that, but they work incredibly hard during these meetings. We come out of them emotionally, mentally and physically drained because there is just so much that needs to be done. Finding a way to do them is hard.

Which brings me to the next item of information; the Foundation's biggest income is from members. Membership is way down. Income overall is way down. We are struggling with the possibility that we might not be able to continue our work unless something happens. That's a huge portion of our meeting this time--we have cut all we can for now so how do we increase income? The bottom line there is this; we need you. We need you to donate when you can, become a member or renew your membership.

The Board makes yearly donations individually along with donating their time and expenses to meetings. I think that proves they understand the situation and are doing their part. They are doing it for you and me and our children and grandchildren. So what are you going to do? There are very few people out there who cannot afford to donate $5 a month IF THEY WANT TO. Yes, there are those in extreme hardship cases but some times that is used as an excuse. Can't do $5 a month? Send in $5 a year. Because if we do not do something soon, there is a possiblity that our source of reliable information, support, brochures, RESEARCH could be gone. Then what will we do?

I am reminding you again that my opinions are just that--my opinions. But they are justified and I stand behind them.

Moon & Stars,

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