tag:blogger.com,1999:blog-3223066428872649554.post6243408079614952294..comments2023-11-03T03:52:17.787-05:00Comments on Living with Willis-Ekbom disease (WED)/Restless Legs Syndrome (RLS): Who, Me?Welcome!http://www.blogger.com/profile/17508138359230018009noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3223066428872649554.post-69496646780626410272011-10-25T17:26:01.132-05:002011-10-25T17:26:01.132-05:00I truly do feel for those people who have no suppo...I truly do feel for those people who have no support from family or friends, much less doctors. I can't imagine how horrible they have to feel when everyone close to them think they are faking. I hope those people find support on-line so that they realize they are not alone in this.Rubyhttps://www.blogger.com/profile/01633577016276858279noreply@blogger.comtag:blogger.com,1999:blog-3223066428872649554.post-90251001562219919382011-10-25T12:11:27.506-05:002011-10-25T12:11:27.506-05:00I am on disability so really cannot even donate 5 ...I am on disability so really cannot even donate 5 dollars, seriously. BUT, I stay active every day, and I agree with you that the active people definitely deal with all aspects of this insidious disease MUCH better. We are calmer and immediately go looking for answers for other people to help.<br />I ahve not slept in 4 days, so I have been even more active the last couple of days, and it actually helps my anxiety and my general state of mind. speaking to the "gene post" more than one has been discovered. I already knew this years ago. me and both of my sisters have severe RLS, plus my 2 nieces, and my oldest nieces 2 kids who are 4 and 7. Plus, we all have PLMD. Neither of my parents had/have it, so the evidence points to the fact that one f them at least had the gene, it was dormant in them, and then they passed it onto us. To me, that is the most important research. Oh, and I just found out that my niece's husband has RLs also, so my family is one big support group. :o) Thankfully, I do not have to deal with family members who think RLs is "all in your head" as others have to. so, that makes it a bit easier for me on some level.Donna McLellannoreply@blogger.comtag:blogger.com,1999:blog-3223066428872649554.post-39219894644771567852011-09-17T17:44:48.706-05:002011-09-17T17:44:48.706-05:00Most of us have to research and learn - so that we...Most of us have to research and learn - so that we can educate our doctors !!<br /><br />Polar BearAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3223066428872649554.post-77587614157907152762011-07-20T06:14:24.143-05:002011-07-20T06:14:24.143-05:00Exciting news! I've been reading about it. T...Exciting news! I've been reading about it. Truly exciting for those of us who have Primary RLS. Thanks for posting and please, send along any new developments as you can! Just curious, how did you find this blog? I would love to reach more people but it is slow going.Welcome!https://www.blogger.com/profile/17508138359230018009noreply@blogger.comtag:blogger.com,1999:blog-3223066428872649554.post-46027007613086056352011-07-19T10:26:19.568-05:002011-07-19T10:26:19.568-05:00Alliant International University recently reported...Alliant International University recently reported on their sleep blog that a gene has been identified. The gene can be used to predict who will suffer from RLS. Ultimately, as we learn more about it, it can be used to develop new and more effective treatments. I'll be glad when that day comes.<br /><br />Debra Stang<br />Alliant Professional Networking SpecialistDebra Stanghttp://news.uofthenet.info/topics/psychology/sleep/noreply@blogger.com